I vividly remember listenning to THIS song during the divorce, mom -insanity-, other madness when I was 16.
And later, when I was in college, dating Mateo, having amazing girl friends and a much warmer life than what I had come from living at home with my mom those last few years, I rememeber THIS song revealing the promise that God's will was at work along that very broken road.
And THIS song will forever make me think of missing my Meegie while I was in Cali! Ha.
Every since the 20 week sonogram, a slew of fears/thoughts have been in my mind. One kidney. Will it work on the outside? Two birth defects, does that mean something more? Pumping/hard bottles - can I do it? Will the extra time Ben takes affect Z and A negatively? Will I still get to enjoy the stages of life Z and A are in or will I entirely miss them? If there is something more, will that mark their lives forever? ... I can't not think these things. Matt, he can easily not think these things - eternal optimist, although Hala helped me realize that I defintely carry the weight of Ben (literally and metaphorically) much different than Matt does. And all those dumb doctor appointments don't help. It is easy to forget all of that when I'm only surrounded by Hope (again, literally and metaphorically) but much harder when Dr. Whatshisface is naming off things not "normal" (stomach not filling, possible tracheoesophageal fistula, too much fluid, too little fluid, transverse, ECV). And so, since October I feel like God has continuely used THIS song to encourage me. A few parts especially - the "sing like never before" - as I felt like this could be something that would cause me to doubt the sovereignity of God - especially if there was something more perhaps more than any other thing I've experienced in my young life. "Let me singing when the evening comes..." - since I felt like at ANY time some Dr could basically tell me anything. The feeling of sonographers doing sonos and not telling you what they obviously know is very frustrating. Like, they have information about your body that you aren't privvy to. And finally, part of the song quotes Psalm 145:8-9 which I feel like almost completely sums up my view of God/theology. The Lord is kind. He is good. And He has compassion on all that he has made. Even Ben. Even me.
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| Me and Ben at just shy of 37 weeks! |
And, as of today we have 18 days until launch. Probably. We scheduled an induction at 39.5 weeks to help us have people there when he is born - rather than it being 2am on a Saturday night. And to minimize stress involved with first feedings. It is most likely going to happen that way - but something else could always happen too. I don't claim to know too much. Especially regarding this boy who is so full of surprises.

3 comments:
"OR Ana successfully jumped on his head enough (she bounces on stomach basically every chance she gets) that it wedged him down there."
This. Sister love even before birth <3
I somehow stumbled across your blog and have been checking in on Ben's progress. A friend of mine has a daughter with clp and was born with clp herself. Recently she mentioned that if we knew of anyone with a diagnosis of clp who might benefit from talking with her, we should put them in touch, and this post is compelling me to share her info. Here is the link to her contact info: http://www.sunlitphotography.com/?p=634
She is a photographer and does portrait sessions for babies with clp in Minneapolis/st Paul metro area. Obviously that doesn't apply to you, but the site has her email.
thanks laurieelisabet!
her photography is awesome!
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